Just Diagnosed w/ Severe Crohn's in the Small Intestine and Liver Hemangiomas

This sounds amazingly trying and really awful! I know you must feel like you are at the end of your rope, but stuck between major surgery and a dead end I would seriously think about looking into a full system nutritional detox. I know my aunt had extreme colitis and she completely revamped her eating habits, juiced, added a pure green drink to the mix and over time she GREATLY improved. I do not know if this is even an option for you or if you are beyond this point, but IF it is an option I would really give it a shot. I truly believe the body has a amazing ability to heal itself given the right tools. I would look into a dietician that specializes in working with people with crohns and I would also seek out a homepathic MD.

I really hope you will be spared the further pain of surgery. Let me know what you decide and how it works out.

-CK

Can i please have more info on the full system nutritional detox? I have recently been diagnosed with Crohns...they want to put me on Cimzia... I'm scared.. Id like to try anything first to help "reverse" cure me of this Crohns...if thats even possible...

I've had Crohn's for 20 years. Don't waste your time trying to manage the disease with diet if your Crohn's is raging. Get the inflammation under control first. I've been on every medication there is for Crohn's. As they go, Cimzia isn't bad. Yes, it's two shots. Nobody likes needles, but it takes about five minutes. Compared to Remicade -- a two or three hour infusion -- it's a breeze. I'm on Cimzia, and it does keep the disease in check for the most part.
The best advice I can offer is to be realistic without making yourself depressed. This is a chronic illness with no cure, yes. But it's manageable. The tricky part is that, although we may share common symptoms, what works for me may not work for you and vice versa. You have to discover what's best for your Crohn's. Also, don't be afraid of doing something "scarry" to get the upper hand. This isn't what you want to hear -- what anybody wants to hear, really -- but some times spending a week in the hospital on bowel rest, getting IV fluids is the best way to get the disease under control. Sometimes not. It all depends on what you are willing to tolerate; that is, how mild or severe the flare-up. Right now, it's all new. As you accumulate more experiences, you'll get more insight and a better understanding. It takes time. There's no quick fix. Just hang in there.
JoeP

well...let me tell you my story if it makes you feel any better.
I am 21 years old and have just been diagnosed of having crohn's.
But I have been suffering from this disease for the past 10 years.
I used to be a very active child,extremely smart and brilliant.
Initially I used to have sudden abdominal pain as though somebody is trying to squeeze my intestines...but whether I have any medication or not the problem would subside automatically....
But what it led to was a bigger problem...I lost weight dramatically..
it would seem like skeleton covered with skin...though I tried my best to gain weight nothing would work...in addition to it I developed an aversion towards eating food...I didn't show as much interest in food as others of my age used to....hence my actual condition of crohn's was thought to be anorexia nervosa, a condition where people wantedly avoid food to remain thin...
the result being that I was blamed for the situation I was in...Luckily I should say I have had longer periods of remissions, but never managed to gain weight...
more than the physical pain, the disease took a great toll over me emotionally. The terrible pain coupled with depression made me think living was meaningless....more than anything people around me not understanding my problemmade me feel worse.
this continuous depression only made my symptoms worse.
I would suffer intestinal obstruction and pain. something which is more worse is that whenever i am about to leave home to go out I would want to go to the toilet. I would suffer from diarhoea atleast once in 2 months, thus leading to further weight loss.
I had always been proud of my academic achievements and even those were starting to tumble.
I avoided attending family functions as people would only ridicule at me for my eating habits and even children much younger than me would be weighing more than me...
And ofcourse I met plenty of doctors and all kinds of blood tests,scans,x-rays,urine tests,stool analysis would reveal nothing.
Every time the doctor would find nothing wrong other than anaemia...
This would further put me down emotionally as I would be ridiculed for not having food...plenty of people will start giving advise on how to eat more food and no one would understand my difficulty.
I had completely lost faith on Doctors and decided never to see another one again...But I suffered complete dehydration repeatedly(atleast once in 6 months)where both continuous vomitting and diarhoea would strike at the same time. I would be on IV for a few hours and somehow the condition would subside on its own.
Since I am pursuing my engineering the amount of work to be done is huge and I was unable to cope up...academic brilliance which was my biggest strength and source of success and happiness became my weakness...this made me further depressed...
recently my condition of complete dehydration and severe abdominal pain forced me to get admitted in a hospital...and finally after 6 days of hospitalisation and plenty of medical examinations, I have finally been diagnosed with crohns.
There is something positive that I would like to share. I used the power of my sub-concious mind to control the effect of my symptoms...and it seems to be working!!....I would instuct in my mind and focus my attention mentally to my intestines asking it not to get inflammed...It is the most effective method known to me.
But I am facing a new problem now...till now i was worried that nobody understood my feelings...now that everybody knows it, I hate it when people sympathise on me...they are not speaking to me normally...This makes me feel diseased and not any better emotionally.
Hope to find a solution this soon...