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Just diagnosed with CD and worried
Thanks so much for the input! Has your Mom tried any other meds or has she always been on asacol?
Hi. I am new to this site and new to having Crohns too. I was just officially diagnosed last week. For a few months they told me it looked and acted like crohns but couldnt call it crohns. Anyways I take Asacol and I'm in the process of getting ready to start cimzia (a shot) for Crohns... there are a few out there.
When I was diagnosed they put me on some type of steroid. The doctor put me on Remicade since it has been pretty successful. I've been on it for almost a year and haven't had any flares...I have pain in my stomach but the doc says it's most likely IBS on top of CD. I also have migranes I also heard that there is a possible connection between the two however CD is a "newer" disease and there isn't enough study to officially say that.
Like alot of people on this forum you will have to be careful of what you eat and listen to your body. I have to plan my eating sometimes because I get severe pain after I eat closer to my infusion time. No matter what time I cannot tolerate greasy or very spicy foods.
I am an active duty Army member and work everyday, I pretty sure it has alot to do with my disease being controlled by Remicade. I do physically fitness training every day with my unit with little issues...seems once I start doing anything physical I get horrible gas in the form of loud burps. I go to the hospital about every 8 weeks to get my Remicade infusions...at that time I do get labs if needed. It all depends on how severe the disease is.
I've been looking for a support group because I don't know what "normal" is...this forum has helped
i was diagnosed 3 years ago. started with pednisone, the steroids. the side effects almost made me want to die. i gained 50 lbs in 6 months. but they did stop the flare up that got me to the hospital in the first place. i as well am on asacol. for the stomach cramps i take bentyl,works in like 10 min. it has been my savior with the cramp issue. although they say it can be addictive, i dont know why seeing that i get no "high" from them.hope this helps out. by the way ivebeen in remission for 2 years!!! i hope it lasts....
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my mom has crohns disease and she has a lot of cramping. it does not last a long time but she has to lay down. she has to watch what she eats and sometimes has to be by a restroom because of the cramps and sudden urge to use the bathroom. dont worry, there medication to help you with the inflamation problems. asacol is what my mom is on and it does a good job for her. if you want to talk further write me and we can talk. swinnie
swinnie